Websites
There are so many websites on the web with the topic of FASD. Here are some great websites about FASD and other related topics. Please let us know if you have a website you think we should share.
- the Accessible Resource Centre – British Columbia is a BC Ministry of Education funded response to the increasing demand for digital or alternate format alternatives to print in BC classrooms. The goal of ARC-BC is to provide BC students with perceptual disabilities and the educators supporting them with high quality digital alternate format materials based on the BC K-12 curriculum.
(link updated Nov. 2010)
- a BC Ministry of Education provincial resource program
- their site is designed to help teachers, parents and para-professionals access information about autism spectrum disorders
- the website includes resources, a list of workshop opportunities, a list of services, a blog and several excellent eLearning modules
- many of the resources and teaching strategies may be applicable to some students with FASD
(link updated Nov. 2010)
www.bc-case.org/learning.shtml
- the BC-CASE Learning Series offers Online Learning Modules to support the professional learning of educators new to Special Education. The modules provide an introductory overview of core special education topics and skills required to support students with special learning needs.
(link updated Nov. 2010)
- BC Coalition of People with Disabilities is an umbrella group whose membership includes people with all types of disabilities
- mandate: advocacy, public awareness, resources
- Transition Magazine is on-line – Winter 2006/2007 issue is on “Brain Injury”
- publishes a magazine (not on-line) called HIV/AIDS Prevention Resources for Educators – “Reaching students with special learning needs”
- Winter 2006/2007 has an article on sexual health for youth with disabilities….many great resources listed
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To download: bccpd.bc.ca/publications/healthandwellness.htm (free)
To order hard copy: phone 1-877-232-7400 or email wdi@bccpd.bc.ca (free in BC)
(link updated Nov. 2010)
www.bctf.ca/TeachingToDiversity
- a shared project of BCTF Research, Special Education Association, Learning Assistance Teachers\' Association, and English as a Second Language Provincial Specialist Association
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purpose of the website:
- maximize support for all students in the BC education system, especially those who receive Special Education, Learning Assistance or ESL services
- provide teachers with access to information about teaching to diversity
- provide resources that can be used by teachers to further their professional development
- provides information, resources, strategies, contacts, etc.
Date posted: January, 2008 (link updated Nov. 2010)
The Canada Northwest FASD Network
As we deliver workshops around the province, we are often asked for “how can we keep up to date with research”? Through our POPFASD website, we attempt to keep you “current’ and to advise you on relevant news. For a great source of current research visit The Canada Northwest FASD Research Network (www.canfasd.ca)
“The Canada Northwest FASD Research Network aims to build research capacity across Western Canada and the Territories to address high priority research questions, to devise more effective prevention and support strategies for women, for individuals with FASD and their families, and to better inform policy”.
“The Canadian Northwest FASD Partnership is an alliance of seven jurisdictions (Alberta, BC, Manitoba, Northwest Territories, Nunavut, Saskatchewan, Yukon) working together towards the development and promotion of an interprovincial/territorial approach to prevention, intervention, care and support of individuals who are affected by Fetal Alcohol Spectrum Disorder. The Partnership has been in place since 1998 ad one of its main focus areas has been the creation of the Canada Northwest FASD Research Network in March 0f 2005.”
Thanks to Dr. Sandra Clarren for linking us to this website!
(link updated Nov. 2010)
http://cdbcsupport.proboards.com
Online CDBC Parent Support Discussion Board:
- this is an anonymous place that parents can come and talk to other parents about FASD, ADHD, and other behavioural issues that they may be experiencing while raising a child
- you can share tips, stories and support other parents
- you will need to take a couple seconds to register a user name and password.
Date reviewed: August, 2010
(link updated Nov. 2010)
www.cmaj.ca/cgi/content/full/172/5_suppl/S1
Reprint: www.cmaj.ca/cgi/reprint/172/5_suppl/S1.pdf
- title of article: Fetal alcohol spectrum disorder: Canadian Guidelines for diagnosis
- provides the first Canadian guidelines for the diagnosis of FAS and its related disabilities
- published in 2005
(link updated Nov. 2010)
- educational resources for those with autism, learning disabilities, and fetal alcohol spectrum disorder
- picture cards for building schedules, timetables, math grids, print out cards for use in communication skills, facial expressions game, etc.
- related research such as "Grant Develops Free Computer Games and Songs to Help Children with FAS"
- do2learn project started ten years ago with a study to determine whether virtual reality (VR) could help children with autism learn the beginning skills of "street crossing" ... this project has expanded to include children with FASD and also now includes a VR project on fire safety
Date posted: January, 2008 (link updated Nov. 2010)
- Substance Abuse and Mental Health Services Administration (US Department of Health and Human Services)
- focus: preventing and treating FASD
- provides information, resources and materials
- has a VERY extensive data base for finding resources
- thanks to Jim Luettgen for recommending this site
Substance Abuse and Mental Health Services Administration (US Department of Health and Human Services)
As well, there are several funded FASD Regional Training Centers across the United States. They are funded by the Centers For Disease Control and Prevention\'s National Center on Birth Defects and Developmental Disabilities. Their websites are:
Great Lakes Regional FASD Training Center
Southeastern Regional FASD Training Center
Arctic Regional FASD Training Center
Midwestern Resional FASD Training Center
(links updated Nov. 2010)
- FASCETS (Diane Malbin)
- content: understanding FASD, bibliography, services, resources, personal stories, training schedule, marketplace....and more
(link updated Nov. 2010)
http://fasd.alberta.ca/fasd-learning-series.aspx
- The FASD Learning Series helps individuals with FASD and their caregivers to learn more about FASD and how to support a person with FASD. The webcast and videoconference educational sessions cover a broad range of topics that target both urban and rural audiences.
(link updated May 2013)
- current and Canadian
- target group: adolescents and adults with FASD
- contents: special events; articles; and many more topics
- cool links to "new research"
(link updated Nov. 2010)
fasdintervention.wordpress.com
- supported by Intervention Network Action Team (iNAT) of the Canadian FASD Research Network (CANFASD)
- shares current news, events, research, resources, and perspectives on interventions for individuals affected by FASD across the lifespan.
(link updated Oct. 2012)
www.faseout.ca
www.faseout.ca/fre/home.htm (French version)
the FAS/FAE Outreach project was a four year project funded by the Public Health Agency of Canada
- the website contains PowerPoint presentations given at workshops and training sessions for the FASEout Project; you can download the presentations for use
- PowerPoint topics include: “Alcohol Use and Pregnancy”, “FASD and Secondary Disabilities”, PowerPoint presentations for high school students, ”Success for Youth”, Diagnosis, Addressing Burn-Out for Grief and Loss…and many more!
(link updated Nov. 2010)
- quarterly international newsletter on FASD from FASIS, a parent/professional partnership
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has home, newsletters, events, resources and articles
sample articles from March, 2007:- Fetal Alcohol Spectrum Disorders: A Judge’s Perspective
- Beyond a Diagnosis
- Rules for Living with Adults with FASD
(links updated Nov. 2010)
FASLink Fetal Alcohol Disorders Society, a non-profit organization
- a research, information, support and communications resource on all things FASD
- has a large, active discussion forum for parents, caregivers, adults with FASD, doctors, teachers, social workers, lawyers, students and government policy makers
- online archive contains more than 130,000 searchable FASD related documents
- focuses on prevention, intervention & support, research, communications and collaboration related to FASD
- sponsored the first Canadian national public FASD Awareness campaign in 2007 with the Great FASD Horseback Ride and Trek Across Canada
(link updated Nov. 2010)
http://www.healthunit.com/sectionList.aspx?sectionID=165
- Middlesex-London, Ontario health unit site has information on sexual health, birth control, relationships, sexually transmitted infections, games, quizzes and videos.
Date Posted: May 2010 (link updated Nov. 2010)
- website of UBC Interprofessional Continuing Education
- features conferences and presentations
(link updated Nov. 2010)
- presented at BCCase April 2010
- "Many high quality digital learning tools are already in our schools, or are readily available to learners everywhere. The purpose of this presentation is to increase awareness of some of these powerful options. These tools have the potential to benefit all learners, especially many of those with what we refer to as high incidence special needs."
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some highlights:
- CLiCk,Speak: Text to speech for web browsers, works well with the Readability tool
- WordTalk: Text to speech for Microsoft Word
- Photo Story 3 for Windows: combine graphics with text, audio narration, and music
- VoiceThread: Display a document or video, then capture and organize audio responses from many people at once
Date posted: April 2010 (link updated Nov. 2010)
- provides information regarding community-based initiatives in the area of FASD prevention, assessment and diagnosis, and family support
- explains role of “key worker”
- provides contact names for all the key workers in the province
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link to the Provincial Plan on FASD:
www.mcf.gov.bc.ca/fasd/ten_year_plan.htm - link to information on the Key Worker and Parent Support Program: www.mcf.gov.bc.ca/fasd/kw_support.htm
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link to the list of contracted agencies for Key Worker programs:
www.mcf.gov.bc.ca/fasd/pdf/key_worker_parent_support_agencies.pdf
(links updated Nov. 2010)
- Developed by the Asante Centre for Fetal Alcohol Syndrome as a centre which will benefit and build knowledge for the community.
- This site provides resources such as educational materials, DVD's, posters, pamphlets for professionals, support staff and caregivers.
(link updated Sept. 2011)
www.motherisk.org/FAR/index.jsp
- MOTHERISK: "Treating the mother - Protecting the unborn"
- the official journal of the FACE Research Network
- open access to many research articles
(link updated Oct. 2012)
- the network will receive $19,572,000 in funding over five years (2010 – 2015) from the Networks of Centres of Excellence of Canada (NCE)
- the vision of NeuroDevNet researchers, whose expertise ranges from child development to brain imaging, genetics and developmental biology, is to accelerate the pace of understanding the causes of neurological deficits, with an initial focus on autism spectrum disorder, fetal alcohol spectrum disorder and cerebral palsy.
- content includes research, events, news and press releases.
Date reviewed: August, 2010 (link updated Nov. 2010)
- the National Organization on Fetal Alcohol Syndrome is dedicated to eliminating birth defects caused by alcohol consumption during pregnancy and to improving the quality of life for those affected individuals and families
- the website provides descriptions of their many programs and resourses, including: Circle of Hope and a K-12 FASD Curriculum
- provides links to resources, a listserve, Journal articles, and events
- provides web-based training for medical and allied health professionals, as well as a certification program for FASD Trainers
- access to specific information regarding FASD for Educators, Advocates, Expectant Mothers, People living with FASD, and Health Care Professionals
Date reviewed: September, 2010 (link updated Nov. 2010)
- NOFASARD is the The National Organisation for Fetal Alcohol Syndrome and Related Disorders Inc. (NOFASARD) (Australia, 1998) (volunteer group)
- target group: parents, carers and others interested in or affected by Fetal Alcohol Spectrum Disorder (FASD)
- contents: newsletters, reports, books, journals and videos, internet resources, handouts and brochures
- “FASD Internet Links” has a great list of internet links organized by subject
(link updated Nov. 2010)
- this website provides information and links to the British Columbia Ministry of Education\'s Provincial Outreach Programs that help meet the educational needs of low-incidence students in BC school districts.
Date posted: March, 2010 (link updated Nov. 2010)
- this is the website of the BC Representative for Children and Youth
- the Representative for Children and Youth supports children, youth and families who need help in dealing with the child welfare system, and advocates for changes to the system itself
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content listing from the home page:
- about RCY
- what\'s happening
- what\'s new
- ask the RCY
- who we serve
- resources
- media room
- contact
- includes a special link for Children and Youth
Date reviewed: March, 2009 (link updated Nov. 2010)
- a BC Ministry of Education provincial resource program
- SET-BC develops and provides assistive technology solutions to BC school districts to assist students with disabilities
- the website provides an extensive collection of assistive technology resources, eLearning modules, online workshops, success stories, and a listing of training opportunities
Date posted: January, 2008 (link updated Nov. 2010)
- the FASD Support Network of Saskatchewan is a parent-led organization for individuals with FASD and their families:
- many resources, including 20 FASD Tips for Parents and Caregivers, quarterly network newsletters, a question and answer section, website links and various brochures are available
- the FASD Support Network also publishes two issues a year of the Living with FASD journal; this is available on the website
Date posted: July, 2010 (link updated Nov. 2010)
- this website was developed by Alberta educators and health professionals to help achieve excellence in teaching sexual health
- it is divided into 3 resource areas for parents, teachers and students
- for educators, it provides evidence-based sexual health education background and delivery methods, current lesson plans and activities, comprehensive resources and a teachers\' lounge where educators can connect
- as well, some lesson plans are available in french.
Date posted: April, 2010 (link updated Nov. 2010)
http://www.teentransitionplanning.ca/
- The Teen Transition Planning System was established to provide a comprehensive training and support mechanism for families and professionals throughout BC.
- The website currently offers information about workshops and training for Transition Coordinators, Path Facilitators and parents.
- There is also a hub area which provides transitioning information, tools and resources.
Date posted: June, 2013
- an informational site that supports families with high risk and special needs individuals
- content: tips for parents that range from relaxation techniques to activities to fight boredom to anger management techniques
- content: information/articles about many topics including FASD, ADHD, sleep issues, post-traumatic stress syndrome, and much more
- expert contributors that include Deb Evansen and Rick Delaney
Date posted: May 2012
- WHITECROW VILLAGE FASD SOCIETY is a non-profit, charitable organisation committed to improving the lives of those who are affected by Fetal Alcohol Spectrum Disorder (FASD) and educating communities and professionals about this prominent neuro-developmental disability.
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features of the website include:
Educational Information Regarding FASD
Circle Talk: Interactive Discussion Forums
Discussion of the unique Whitecrow Philosophy and Vision
Comprehensive Whitecrow Program and Project Descriptions
Photo Galleries
Multi Media Resource Library for Educators
Cross Discipline Reference Library Coming Soon!
Village Showcase (features members of the Whitecrow Community)
Village Market (online store) Coming Soon!
Periodic Newsletter Mailings
Events Calendar
Online Program Registration System
Media Kit
Date posted: May, 2008 (link updated Nov. 2010)
