Websites
There are so many websites on the web with the topic of FASD. Here are some great websites about FASD and other related topics. Please let us know if you have a website you think we should share.
- a BC Ministry of Education provincial resource program
- their site is designed to help teachers, parents and para-professionals access information about autism spectrum disorders
- the website includes resources, a list of workshop opportunities, a list of services, a blog and several excellent eLearning modules
- many of the resources and teaching strategies may be applicable to some students with FASD
(link updated Dec., 2009)
- BC Coalition of People with Disabilities – is an umbrella group whose membership includes people with all types of disabilities
- mandate: advocacy, public awareness, resources
- Transition Magazine is on-line – Winter 2007 issues is on “Brain Injury”
- publishes a magazine (not on-line) called HIV/AIDS Prevention Resources for Educators – “Reaching students with special learning needs”
- winter 2006/2007 has an article on sexual health for youth with disabilities….many great resources listed
- To download: bccpd.bc.ca/publications/healthandwellness.htm(free)
To order hard copy: phone 1-877-232-7400 or email wdi@bccpd.bc.ca (free in BC)
(link updated Dec., 2009)
www.bctf.ca/TeachingToDiversity
- a shared project of BCTF Research, Special Education Association, Learning Assistance Teachers' Association, and English as a Second Language Provincial Specialist Association
- purpose of the website:
- maximize support for all students in the BC education system, especially those who receive Special Education, Learning Assistance or ESL services
- provide teachers with access to information about teaching to diversity
- provide resources that can be used by teachers to further their professional development
- provides information, resources, strategies, contacts, etc.
Date posted: January, 2008 (link updated Dec. 2009)
Website Review: The Canada Northwest FASD Network
As we deliver workshops around the province, we are often asked for “how can we keep up to date with research”? Through our POPFASD website, we attempt to keep you “current’ and to advise you on relevant news. For a great source of current research visit The Canada Northwest FASD Research Network (www.canfasd.ca)
“The Canada Northwest FASD Research Network aims to build research capacity across Western Canada and the Territories to address high priority research questions, to devise more effective prevention and support strategies for women, for individuals with FASD and their families, and to better inform policy”.
“The Canadian Northwest FASD Partnership is an alliance of seven jurisdictions (Alberta, BC, Manitoba, Northwest Territories, Nunavut, Saskatchewan, Yukon) working together towards the development and promotion of an interprovincial/territorial approach to prevention, intervention, care and support of individuals who are affected by Fetal Alcohol Spectrum Disorder. The Partnership has been in place since 1998 ad one of its main focus areas has been the creation of the Canada Northwest FASD Research Network in March 0f 2005.”
Thanks to Dr. Sandra Clarren for linking us to this website!
(link updated Dec., 2009)
www.cmaj.ca/cgi/content/full/172/5_suppl/S1
- title of article: Fetal alcohol spectrum disorder: Canadian Guidelines for diagnosis
- provides the first Canadian guidelines for the diagnosis of FAS and its related disabilities
- published in 2005
(link updated Dec., 2009)
- educational resources for those with autism, learning disabilities, and fetal alcohol spectrum disorder
- picture cards for building schedules, timetables, math grids, print out cards for use in communication skills, facial expressions game, etc.
- related research such as "Grant Develops Free Computer Games and Songs to Help Children with FAS"
- do2learn project started ten years ago with a study to determine whether virtual reality (VR) could help children with autism learn the beginning skills of "street crossing" ... this project has expanded to include children with FASD and also now includes a VR project on fire safety
Date posted: January, 2008 (link updated Dec., 2009)
- Substance Abuse and Mental Health Services Administration (US Department of Health and Human Services)
- focus: preventing and treating FASD
- provides information, resources and materials
- has a VERY extensive data base for finding resources
- thanks to Jim Luettgen for recommending this site
Substance Abuse and Mental Health Services Administration (US Department of Health and Human Services)
As well, there are four FASD Regional Training Centers across the United States. They are funded by the Centers For Disease Control and Prevention's National Center on Birth Defects and Developmental Disabilities. Their websites are:
Western Regional Training Center for Fetal Alcohol Spectrum Disorders
mimh.edu/Home/tabid/53/Default.aspx
Midwest Regional Training Center for Fetal Alcohol Spectrum Disorders
beintheknownj.org/category/fasd/
Northeast Regional Training Centre for Fetal Alcohol Spectrum Disorders
sefasrtc.org
Southeast Regional Training Center for Fetal Alcohol Spectrum Disorders
(links updated Dec., 2009)
- FASCETS (Diane Malbin)
- content: understanding FASD, bibliography, services, resources, personal stories, training schedule, marketplace....and more
(link updated Dec., 2009)
- very current and Canadian
- target group: adolescents and adults with FASD
- contents: special events; articles; and many more topics
- cool links to "new research"
(link updated Dec., 2009)
www.faseout.ca
www.faseout.ca/fre/home.htm (French version)
- the FAS/FAE Outreach project was a four year project funded by the Public Health Agency of Canada
- the website contains PowerPoint presentations given at workshops and training sessions for the FASEout Project; you can download the presentations for use
- PowerPoint topics include: “Alcohol Use and Pregnancy”, “FASD and Secondary Disabilities”, PowerPoint presentations for high school students, ”Success for Youth”, Diagnosis, Addressing Burn-Out for Grief and Loss…and many more!
(links updated Dec., 2009)
- quarterly international newsletter on FASD from FASIS, a parent/professional partnership
- has home, newsletters, events, resources and articles
sample articles from March, 2007:- Fetal Alcohol Spectrum Disorders: A Judge’s Perspective
- Beyond a Diagnosis
- Rules for Living with Adults with FASD
(links updated Dec., 2009)
www.helpthemgrow.com
www.biengrandir.com (French version)
- website is hosted by www.investinkids.ca
- audience: parents and professionals
- content: information on the developmental milestones from ages 0 - 5; 3 sections (birth to 18 months; 1 to 3 years; 3 to 5 years of age; includes video and text
- focus: "From birth to age 5, children's brains develop the basic structures that influence how they will learn, think and behave for the rest of their lives". Includes "10 essentials on how to support your baby's development".
Date posted: November, 2009 (links updated Dec., 2009)
www.interprofessional.ubc.ca/FASD.htm
- website of UBC Interprofessional Continuing Education
- features conferences and presentations
- webcasting from the 2007 FASD International Conference plenary sessions - includes current research and presentations by Malbin, Astley, Spohr, Clarren, Jacobson and others...
(link updated Dec., 2009)
- new (Janaury, 2007) website
- provides information regarding community-based initiatives in the area of FASD prevention, assessment and diagnosis, and family support
- explains role of “key worker”
- provides contact names for all the key workers in the province
- Link to the Provincial Plan on FASD:
www.mcf.gov.bc.ca/fasd/ten_year_plan.htm - Link to information on the Key Worker and Parent Support Program: www.mcf.gov.bc.ca/fasd/kw_support.htm
- Link to the list of contracted agencies for Key Worker programs:
www.mcf.gov.bc.ca/fasd/pdf/key_worker_parent_support_agencies.pdf - Link to the Key Worker and Parent Support Evaluation reports: www.mcf.gov.bc.ca/fasd/partnership.htm
- Link to the program standards for Key Workers:
www.mcf.gov.bc.ca/fasd/pdf/kw_guidelines_june_08.pdf
(links updated Dec., 2009)
- NOFASARD is the The National Organisation for Fetal Alcohol Syndrome and Related Disorders Inc. (NOFASARD) (Australia, 1998) (volunteer group)
- target group: parents, carers and others interested in or affected by Fetal Alcohol Spectrum Disorder (FASD)
- contents: newsletters, reports, books, journals and videos, internet resources, handouts and brochures
- “FASD Internet Links” has a great list of internet links organized by subject
(link updated Dec., 2009)
- this is the website of the BC Representative for Children and Youth
- the Representative for Children and Youth supports children, youth and families who need help in dealing with the child welfare system, and advocates for changes to the system itself
- content listing from the home page:
- about RCY
- what's happening
- what's new
- ask the RCY
- who we serve
- resources
- media room
- contact
- includes a special link for Children and Youth
Date reviewed: March, 2009 (link updated Dec., 2009)
- a BC Ministry of Education provincial resource program
- SET-BC develops and provides assistive technology solutions to BC school districts to assist students with disabilities
- the website provides an extensive collection of assistive technology resources, eLearning modules, online workshops, success stories, and a listing of training opportunities
Date posted: January, 2008 (link updated Dec., 2009)
- WHITECROW VILLAGE FASD SOCIETY is a non-profit, charitable organisation committed to improving the lives of those who are affected by Fetal Alcohol Spectrum Disorder (FASD) and educating communities and professionals about this prominent neuro-developmental disability.
- Features of the website include:
Educational Information Regarding FASD
Circle Talk: Interactive Discussion Forums
Discussion of the unique Whitecrow Philosophy and Vision
Comprehensive Whitecrow Program and Project Descriptions
Photo Galleries
Multi Media Resource Library for Educators
Cross Discipline Reference Library Coming Soon!
Village Showcase (features members of the Whitecrow Community)
Village Market (online store) Coming Soon!
Periodic Newsletter Mailings
Events Calendar
Online Program Registration System
Media Kit
Date posted: May, 2008 (link updated Dec., 2009)
